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dc.contributor.authorTittensor, Pen
dc.contributor.authorTittensor, Sen
dc.contributor.authorChisanga, Een
dc.contributor.authorBagary, Men
dc.contributor.authorJory, Cen
dc.contributor.authorShankar, Ren
dc.date.accessioned2021-07-09T12:09:49Z
dc.date.available2021-07-09T12:09:49Z
dc.date.issued2021-09en
dc.identifier.urihttp://hdl.handle.net/10026.1/17345
dc.description.abstract

BACKGROUND: UK wide Oromucosal Midazolam is used as an emergency treatment in community for seizures administered by family/carers with the right training. The Joint Epilepsy Council (JEC) UK which produced the training guidelines disbanded in 2016. PURPOSE: Provide standards for basic epilepsy education and rescue medication (Midazolam) administration. METHODS: The Epilepsy Nurses Association (ESNA), The International League against Epilepsy, British Chapter (ILAE) and the Royal college of Psychiatrists (RCPsych), used the Delphi process to update guidelines for the administration of oromucosal midazolam including developing a voluntary on-line test for carers. During 2017-2019 a facilitator worked with two ESNA committees to update the existing guidance and another to develop a question-bank. Both committee outputs were circulated to the ESNA membership, then ILAE and RCPsych for review. Patient-facing organizations and charities' opinions were solicited. All feedback was assimilated. A private provider was contracted to deliver the test. RESULTS: A consensus process involving two task and finish groups of 19 people each compared, reflected, debated, and engaged with stakeholders across three stages. The updated ratified guidelines were circulated nationally. The Delphi process highlighted many regions and individuals had local assessment tools and procedures in place, while others (around 50%) had no assessment provision. 278 carers with a 95% pass-rate and 100% positive feedback have undertaken the online test (10/2020). CONCLUSION: The UK-wide care provision gap in basic epilepsy-training and safe rescue medication administration is now addressed. A two-yearly update to the guidelines and test is planned.

en
dc.format.extent108180 - ?en
dc.languageengen
dc.language.isoengen
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internationalen
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internationalen
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internationalen
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internationalen
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internationalen
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
dc.subjectBasic epilepsy trainingen
dc.subjectCommunity prevention of statusen
dc.subjectEpilepsy safetyen
dc.subjectMidazolamen
dc.subjectRescue medicationen
dc.subjectCaregiversen
dc.subjectEpilepsyen
dc.subjectHumansen
dc.subjectMidazolamen
dc.subjectSeizuresen
dc.subjectUnited Kingdomen
dc.titleUK framework for basic epilepsy training and oromucosal midazolam administration.en
dc.typeJournal Article
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/34252835en
plymouth.volume122en
plymouth.publication-statusPublisheden
plymouth.journalEpilepsy Behaven
dc.identifier.doi10.1016/j.yebeh.2021.108180en
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Professional Services staff
dc.publisher.placeUnited Statesen
dcterms.dateAccepted2021-06-11en
dc.rights.embargodate9999-12-31en
dc.identifier.eissn1525-5069en
dc.rights.embargoperiodNot knownen
rioxxterms.versionofrecord10.1016/j.yebeh.2021.108180en
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/en
rioxxterms.licenseref.startdate2021-09en
rioxxterms.typeJournal Article/Reviewen


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