ORCID

Abstract

BackgroundMedication data are a valuable resource in epidemiological studies. As the most common data collection method of medication data is self-report, it is important to understand the accuracy of this in comparison with other methods such as dispensing records. The aim of this study was to compare the agreement between two different sources of medication data of older adults with intellectual disability (ID).MethodsSelf-report medication data were gathered from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing and linked to national pharmacy dispensing records. The kappa statistic was used to measure agreement between the two data sources for psychotropic medication.ResultsThe lowest agreement level was ‘moderate’ for the number of anxiolytics reported (kappa 0.56). The highest level of agreement was ‘almost perfect’ for the binary variable of antipsychotics (kappa 0.91). Other agreement results were ‘substantial’ or ‘almost perfect’.ConclusionsGood agreement was found between the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing medication dataset and national dispensing records. Self-report medication data appear to be a valid method of data collection in psychotropic medication use in adults with ID.

Publication Date

2024-10-15

Publication Title

Journal of Intellectual Disability Research

Volume

69

Issue

1

ISSN

0964-2633

Acceptance Date

2024-09-25

Deposit Date

2024-10-15

Funding

R. S. has received institutional and research support from LivaNova, UCB, Eisai, Veriton Pharma, Bial, Angelini, UNEEG and Jazz/GW Pharmaceuticals outside the submitted work. He holds grants from NIHR AI, SBRI and other funding bodies all outside this work. The remaining authors have no possible conflicts of interest. This EQUIP study is funded by the Health Research Board (HRB) Secondary Data Analysis Award (SDAP\u20102021\u2010016). IDS\u2010TILDA is funded by the HRB and the Department of Health (IDS\u2010TILDA\u20102018\u20101).

Keywords

agreement, intellectual disabilities, intellectual disability, pharmacoepidemiology, psychotropic medication, psychotropics, Ireland/epidemiology, Humans, Self Report, Middle Aged, Male, Psychotropic Drugs/therapeutic use, Intellectual Disability/epidemiology, Aged, 80 and over, Female, Aged, Longitudinal Studies

Creative Commons License

Creative Commons Attribution 4.0 International License
This work is licensed under a Creative Commons Attribution 4.0 International License.

First Page

103

Last Page

111

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