Show simple item record

dc.contributor.authorAinsworth, Ben
dc.contributor.authorChatburn, E
dc.contributor.authorBansal, AT
dc.contributor.authorFulton, Olivia
dc.contributor.authorHamerlijnck, Dominique
dc.contributor.authorColeman, C
dc.contributor.authorEger, Katrien
dc.contributor.authorHyland, Michael
dc.contributor.authorHolmes, J
dc.contributor.authorHeaney, L
dc.contributor.authorSedlák, V
dc.contributor.authorŠkrgat, S
dc.contributor.authorEdelbaher, N
dc.contributor.authorten Brinke, A
dc.contributor.authorPorsbjerg, C
dc.contributor.authorGaga, Mina
dc.contributor.authorChaves Loureiro, Claudia
dc.contributor.authorDjukanovic, R
dc.contributor.authorBerret, E
dc.contributor.authorKwon, N
dc.identifier.otherARTN 00717-2022

Introduction Severe asthma is a complex, multidimensional disease. Optimal treatment, adherence and outcomes require shared decision-making, rooted in mutual understanding between patient and clinician. This study used a novel, patient-centred approach to examine the most bothersome aspects of severe asthma to patients, as seen from both perspectives in asthma registries. Methods Across seven countries, 126 patients with severe asthma completed an open-ended survey regarding most the bothersome aspect(s) of their asthma. Patients’ responses were linked with their treating clinician who also completed a free-text survey about each patient’s most bothersome aspect(s). Responses were coded using content analysis, and patient and clinician responses were compared. Finally, asthma registries that are part of the SHARP (Severe Heterogeneous Asthma Research collaboration, Patientcentred) Clinical Research Collaboration were examined to see the extent to which they reflected the most bothersome aspects reported by patients. Results 88 codes and 10 themes were identified. Clinicians were more focused on direct physical symptoms and were less focused on “holistic” aspects such as the effort required to self-manage the disease. Clinicians accurately identified a most bothersome symptom for 29% of patients. Agreement was particularly low with younger patients and those using oral corticosteroids infrequently. In asthma registries, patient aspects were predominantly represented in questionnaires. Conclusions Results demonstrated different perspectives and priorities between patients and clinicians,with clinicians more focused on physical aspects. These differences must be considered when treatingindividual patients, and within multidisciplinary treatment teams. The use of questionnaires that includemultifaceted aspects of disease may result in improved asthma research.

dc.publisherEuropean Respiratory Society (ERS)
dc.subjectClinical Research
dc.subject7.3 Management and decision making
dc.subject7.1 Individual care needs
dc.titleWhat bothers severe asthma patients most? A paired patient–clinician study across seven European countries
dc.typeJournal Article
plymouth.journalERJ Open Research
plymouth.organisational-group|Plymouth|Research Groups
plymouth.organisational-group|Plymouth|Research Groups|Centre for Brain, Cognition and Behaviour (CBCB)
plymouth.organisational-group|Plymouth|Research Groups|Centre for Brain, Cognition and Behaviour (CBCB)|Behaviour
plymouth.organisational-group|Plymouth|Faculty of Health
plymouth.organisational-group|Plymouth|Faculty of Health|School of Psychology
plymouth.organisational-group|Plymouth|Users by role
plymouth.organisational-group|Plymouth|Users by role|Academics

Files in this item


This item appears in the following Collection(s)

Show simple item record

All items in PEARL are protected by copyright law.
Author manuscripts deposited to comply with open access mandates are made available in accordance with publisher policies. Please cite only the published version using the details provided on the item record or document. In the absence of an open licence (e.g. Creative Commons), permissions for further reuse of content should be sought from the publisher or author.
Theme by 
Atmire NV