ORCID

Abstract

While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.

DOI

10.3233/SHTI230938

Publication Date

2024-01-25

Publication Title

MEDINFO 2023 - The Future is Accessible: Proceedings of the 19th World Congress on Medical and Health Informatics

ISBN

9781643684567

Keywords

EHR, electronic health record, online record access, ORA, PAEHR, Patient accessible electronic health records, patient portal

First Page

114

Last Page

118

Share

COinS