Young People’s experiences of living with endocrine conditions.

ORCID

Abstract

Background: The management of endocrine conditions can beproblematic and have a detrimental impact on mental wellbeing. Despitethe large number of young people with a range of endocrine conditions,research is limited on the psychological and physical impact of theconditions on their daily lives.Aim: To explore the lived experiences of young people aged 10 to 25 withendocrine conditions regarding condition management and psychosocialsymptoms.Methods: Nine young people aged 11 to 25 years (all female) took part insemi-structured interviews about the impact of their condition. Data wereexplored using thematic analysis.Findings: Three themes were identified: impact on daily life (includingcondition management, organisation, impact on work and education,understanding and support and limited independence); impact onrelationships (formation and maintenance, both with health professionalsand key close individuals); and an uncertain future (future limitations andrestrictions, and future changes in the conditions).Conclusions: Multiple factors impact on the lived experiences of youngpeople with endocrine conditions. There is a need for greater informationand training for both health professionals and education providers aroundthe biopsychosocial impact of endocrine conditions on young people.

Publication Date

2025-09-15

Publication Title

Journal of Family and Child health

Volume

2

Issue

7

Acceptance Date

2025-08-31

Deposit Date

2025-10-10

Embargo Period

2026-03-15

First Page

296

Last Page

305

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This item is under embargo until 15 March 2026

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