Description of the cross‐cultural process adopted in the STRiDE (STrengthening Responses to dementia in DEveloping countries) program: A methodological overview

Authors

• Nicolas Farina, Brighton and Sussex Medical School
• Roxanne Jacobs, University of Cape Town
• Tara Puspitarini Sani, Atma Jaya Catholic University of Indonesia
• Marguerite Schneider, University of Cape Town
• Imelda Theresia, Alzheimer's Indonesia
• Yuda Turana, Atma Jaya Catholic University of Indonesia
• Fasihah Irfani Fitri, University of North Sumatra
• Emiliano Albanese, Università della Svizzera italiana
• K Lorenz‐Dant
• Sumaiyah Docrat, University of Cape Town
• PD Toit
• Cleusa P. Ferri, Universidade Federal de São Paulo
• Ishtar Govia, The University of the West Indies
• A Comas‐Herrera
• Aliaa Ibnidris, Università della Svizzera italiana
• Martin Knapp, The London School of Economics and Political Science
• Sube Banerjee, Faculty of Health

ORCID

• Nicolas Farina: 0000-0002-0635-2547
• Sube Banerjee: 0000-0002-8083-7649

Abstract

Cross-cultural adaptation is an important part of using validated questionnaires across countries and settings. Here we describe the cross-cultural process adopted in the STRiDE (STrengthening Responses to dementia in DEveloping countries) program.We adopted a cross-cultural adaptation process including forward translation, back translations, and cognitive interviews of the STRiDE toolkit. In total, 50 older adults and 41 carers across sites in Indonesia and South Africa participated in cognitive interviews; field notes and verbatim quotes are reported.We describe the cross-cultural adaptation process of the STRiDE toolkit. During the process, issues were identified with the translated toolkit, including aspects related to cultural appropriateness, terminology equivalence, and timings.The data demonstrate that a rigorous, yet pragmatic, cross-cultural adaptation process can be achieved even with limited resources. Our process should help the design and conduct of future dementia research in various contexts.

DOI Link

10.1002/dad2.12293

Publication Date

2022-03-15

Publication Title

Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring

Volume

14

Issue

1

ISSN

2352-8729

Acceptance Date

2022-01-18

Deposit Date

2022-04-29

Embargo Period

2022-04-30

Funding

This work was supported by the UK Research and Innovation's Global Challenges Research Fund (ES/P010938/1).

Keywords

Afrikaans, Bahasa, cross-cultural adaptation, dementia, Indonesia, instruments, language, measures, middle income, Sepedi, South Africa, Xhosa

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

Recommended Citation

Farina, N., Jacobs, R., Sani, T., Schneider, M., Theresia, I., Turana, Y., Fitri, F., Albanese, E., Lorenz‐Dant, K., Docrat, S., Toit, P., Ferri, C., Govia, I., Comas‐Herrera, A., Ibnidris, A., Knapp, M., & Banerjee, S. (2022) 'Description of the cross‐cultural process adopted in the STRiDE (STrengthening Responses to dementia in DEveloping countries) program: A methodological overview', Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring, 14(1). Available at: 10.1002/dad2.12293