ORCID
- Tomasina M. Oh: 0000-0003-4662-3193
- Rod Sheaff: 0000-0002-7984-2627
- Stuart Spicer: 0000-0001-7585-8886
- Victoria Allgar: 0000-0002-5228-2623
- Cath Quinn: 0000-0003-4644-4603
- Ian Sherriff: 0000-0002-3649-0369
- Richard Byng: 0000-0001-7411-9467
- Hannah Wheat: 0000-0003-3211-6254
Abstract
Background: Different dementia support roles exist but evidence is lacking on which aspects are best, for whom, and in what circumstances, and on their associated costs and benefits. Phase 1 of the Dementia PersonAlised Care Team programme (D-PACT) developed a post-diagnostic primary care-based intervention for people with dementia and their carers and assessed the feasibility of a trial. Aim: Phase 2 of the programme aims to 1) refine the programme theory on how, when, and for whom the intervention works; and 2) evaluate its value and impact. Design & setting: A realist longitudinal mixed-methods evaluation will be conducted in urban, rural, and coastal areas across South West and North West England where low-income or ethnic minority populations (for example, South Asian) are represented. Design was informed by patient, public, and professional stakeholder input and phase 1 findings. Method: High-volume qualitative and quantitative data will be collected longitudinally from people with dementia, carers, and practitioners. Analyses will comprise the following: 1) realist longitudinal case studies; 2) conversation analysis of recorded interactions; 3) statistical analyses of outcome and experience questionnaires; 4a) health economic analysis examining costs of delivery; and 4b) realist economic analysis of high-cost events and ‘near misses’. All findings will be synthesised using a joint display table, evidence appraisal tool, triangulation, and stakeholder co-analysis. Conclusion: The realist evaluation will describe how, why, and for whom the intervention does or does not lead to change over time. It will also demonstrate how a non-randomised design can be more appropriate for complex interventions with similar questions or populations.
DOI
10.3399/BJGPO.2023.0019
Publication Date
2023-01-01
Publication Title
BJGP Open
Volume
7
Issue
3
ISSN
1849-5435
Keywords
caregivers, dementia, personalised care, primary health care, realist evaluation
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 International License.
Recommended Citation
Wheat, H., Weston, L., Oh, T., Morgan-Trimmer, S., Ingram, W., Griffiths, S., Sheaff, R., Clarkson, P., Medina-Lara, A., Musicha, C., Spicer, S., Ukoumunne, O., Allgar, V., Creanor, S., Clark, M., Quinn, C., Gude, A., McCabe, R., Batool, S., Smith, L., Richards, D., Shafi, H., Warwick, B., Lasrado, R., Hussain, B., Jones, H., Dalkin, S., Bate, A., Sherriff, I., Robinson, L., & Byng, R. (2023) 'Longitudinal realist evaluation of the Dementia PersonAlised Care Team (D-PACT) intervention: protocol', BJGP Open, 7(3). Available at: https://doi.org/10.3399/BJGPO.2023.0019
