Abstract
Introduction COVID-19 has impacted people with dementia and their family carers, yet little is known about effects on overall quality of life. Methods In a UK cohort study, pre- and post-pandemic data were collected from 114 carers and 93 recently diagnosed people with dementia. Latent growth curve modeling examined change in quality of life. Results Carers reported significant decline in quality of life, although no change was demonstrated by people with dementia. In multivariable analyses, higher levels of cognitive impairment, deprivation, study site, and lower number of memory clinic contacts were associated with greater decline in carer quality of life. Discussion Maintaining life quality for people with dementia during the pandemic appears to have come at the expense of their family carers. This inequity has fallen hardest on those caring for people with more severe dementia, in deprived areas, and with least support from memory services. These effects may be prevented or reversed by post-diagnostic care.
DOI
10.1002/trc2.12236
Publication Date
2022-05-02
Publication Title
Alzheimer's and Dementia: Translational Research and Clinical Interventions
Volume
8
Issue
1
Publisher
Wiley Open Access
ISSN
2352-8737
Embargo Period
2024-11-19
Recommended Citation
Hicks, B., Read, S., Hu, B., Banerjee, S., & et al. (2022) 'A cohort study of the impact of COVID‐19 on the quality of life of people newly diagnosed with dementia and their family carers', Alzheimer's and Dementia: Translational Research and Clinical Interventions, 8(1). Wiley Open Access: Available at: https://doi.org/10.1002/trc2.12236
