ORCID

Abstract

Introduction There is a lack of community-based rehabilitation for stroke in the Philippines, and research on this topic is limited. Different challenges may be encountered in urban and rural settings. The aim of the Tulong, Ugnayan ng Lingap At gabaY (TULAY) project is to develop a context-appropriate, community-based stroke support programme, consisting of self-management and training resources to augment the rehabilitation and recovery process. An important stage in the development of this programme is to qualitatively explore the experiences and needs of all stakeholders. Materials and methods Using co-designed and evidence-based topic guides, in-depth semi-structured interviews will be conducted with people living with stroke, household carers and care providers. We will aim to gain a representation of different regions (within Luzon, Visayas, and Northern Mindanao), socioeconomic levels, and urban and rural locations. For people with stroke and household carers, interviews will be supplemented by auto-photography and visual elicitation to widen access for those that prefer to share their experiences visually or have communication problems. An interpretivist paradigm will be applied across all interview data and the consolidated criteria for reporting qualitative research (COREQ) will be followed. Thematic analysis will be undertaken using guidance by Braun and Clarke. Discussion To our knowledge, this study is the first of its kind in the Philippines. It has several methodological strengths, including the capture of perspectives from multiple stakeholders in diverse settings, the inclusion of people with communication difficulties, use of visual methods, and analysis in the native language. The findings will have various applications, including the potential to influence policy, practice and guidelines, and to inform the development of the TULAY stroke support programme.

Publication Date

2024-08-22

Publication Title

PLoS ONE

Volume

19

Issue

8

ISSN

1932-6203

Acceptance Date

2024-07-09

Deposit Date

2024-09-04

Funding

This research was funded by the National Institute for Health and Care Research (grant no. 150244) using UK aid from the UK Government to support global health research (https://www.nihr.ac.uk/explore-nihr/funding-programmes/globalhealth.htm). The views expressed in this publication are those of the authors and not necessarily those of the NIHR or the UK government. The funders had no role in study design, decision to publish, or preparation of the manuscript. Funding was received by BK and ME on behalf of the project team. The authors would like to thank all members of the TULAY project team, the TULAY Steering Committee, and the PPIE group for their valuable input. The full TULAY project team (in July 2024) is as follows:

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