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dc.contributor.authorMole, L
dc.contributor.authorHickson, M
dc.contributor.authorKent, B
dc.contributor.authorAbbott, R
dc.date.accessioned2019-09-09T11:34:15Z
dc.date.available2019-09-09T11:34:15Z
dc.date.issued2019-09-05
dc.identifier.issn1471-3012
dc.identifier.issn1741-2684
dc.identifier.otherARTN 1471301219872032
dc.identifier.urihttp://hdl.handle.net/10026.1/14895
dc.description.abstract

<jats:sec><jats:title>Objectives</jats:title><jats:p> Few studies have captured the experiences of family carers who manage the nutritional needs of family members living with dementia at home. The identification and management of symptoms that may affect nutritional status is often reliant upon the family carer. This interpretative phenomenological study aimed to explore the experiences and perceptions of the nutritional care of people living with dementia at home from the perspectives of the family members who support them. </jats:p></jats:sec><jats:sec><jats:title>Method</jats:title><jats:p> Semi-structured interviews were conducted between October 2017 and February 2018. Participants were also asked to keep a diary of experiences for two weeks before the interview. An Interpretative Phenomenological Analysis approach was used throughout. Findings: Eight participants, with a mean age of 69.6 years residing in South West England were recruited and represented a range of familial roles. Following analysis, three superordinate themes were identified: ‘becoming carer and cook’, ‘changing role and relationships’ and ‘emotional eating’. </jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p> Family carers make food and drink decisions daily, and feel a duty to take on the responsibility for food shopping and cooking. They are conscious about ‘doing the right thing’ when it comes to providing nutritional care, and some feel uncertain about the food choices they are making, particularly regarding a reliance on convenience foods. Changes in appetite, food preferences and mealtime habits related to dementia can lead to disruption affecting the dyad. It is important that family carers and people living at home with dementia are provided with adequate support regarding identifying nutritional risks, making appropriate food and drink choices and preventing the risk of malnutrition in the dyad. </jats:p></jats:sec>

dc.format.extent147130121987203-147130121987203
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoen
dc.publisherSAGE Publications
dc.subjectdementia
dc.subjectnutrition
dc.subjectfamily carers
dc.subjectinterpretative phenomenological analysis
dc.subjectliving at home
dc.titleFamily carers’ experiences of nutritional care for people living with dementia at home: An interpretative phenomenological analysis
dc.typejournal-article
dc.typeArticle
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/31488020
plymouth.issue1
plymouth.volume20
plymouth.publication-statusPublished
plymouth.journalDementia
dc.identifier.doi10.1177/1471301219872032
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/School of Health Professions
plymouth.organisational-group/Plymouth/Faculty of Health/School of Nursing and Midwifery
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeEngland
dcterms.dateAccepted2019-08-01
dc.rights.embargodate2019-9-13
dc.identifier.eissn1741-2684
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.1177/1471301219872032
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2019-09-05
rioxxterms.typeJournal Article/Review


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