ORCID

Abstract

Background: The aim of the study was to identify the post-traumatic growth status and influencing factors of parents with children with Duchenne muscular dystrophy (DMD). Methods: We adopted a cross-section survey study. Between February and December 2022, 181 parents responded to the survey including a participants’ characteristics section, post-traumatic growth assessment scale, caregiver burden scale, and social support assessment scale. Multiple linear regression analysis was used to investigate influencing factors of post-traumatic growth. Results: The mean score of post-traumatic growth of parents was 56.66 (SD ± 18.67). Post-traumatic growth was positively correlated with social support (r = 0.452, P < 0.01) and negatively correlated with care burden (r = -0.207, P < 0.01). Multiple linear regression showed that the child’s age, course of disease, self-care ability, parent’s working condition, residence, education, number of children, and health status were the main influencing factors for the post-traumatic growth of parents (P < 0.001). Conclusion: The post-traumatic growth of parents with children with DMD was at a moderate level. Healthcare professionals should pay attention to the psychological state of parents with children with this rare disease and promote post-traumatic growth through psychological mindfulness interventions, strengthening family and social support, and providing care knowledge and skills.

Publication Date

2025-02-21

Publication Title

Italian Journal of Pediatrics

Volume

51

Issue

1

ISSN

1720-8424

Keywords

Care burden, Children, Duchenne muscular dystrophy, Family, Parents, Post-traumatic growth, Social support, Parents/psychology, Cross-Sectional Studies, Humans, Middle Aged, Social Support, Child, Preschool, Male, Posttraumatic Growth, Psychological, Muscular Dystrophy, Duchenne/psychology, Adolescent, Female, Adult, Surveys and Questionnaires, Child

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