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dc.contributor.authorTomlinson, J
dc.contributor.authorPinkney, Jonathan
dc.contributor.authorAdams, L
dc.contributor.authorStenhouse, E
dc.contributor.authorBendall, Alison
dc.contributor.authorCorrigan, O
dc.contributor.authorLetherby, G
dc.date.accessioned2017-08-08T14:14:45Z
dc.date.issued2017-10
dc.identifier.issn0309-2402
dc.identifier.issn1365-2648
dc.identifier.urihttp://hdl.handle.net/10026.1/9702
dc.description.
dc.description.abstract

<jats:title>Abstract</jats:title><jats:sec><jats:title>Aims</jats:title><jats:p>To explore the impact of the diagnosis of polycystic ovary syndrome on health/ill health identity, how women experience this diagnosis and their health beliefs.</jats:p></jats:sec><jats:sec><jats:title>Background</jats:title><jats:p>Polycystic ovary syndrome is a common and heterogeneous condition, giving rise to a wide range of different health concerns. Previous research on polycystic ovary syndrome has been dominated by the medical perspective and less is known about the experiences and needs of women.</jats:p></jats:sec><jats:sec><jats:title>Design</jats:title><jats:p>A qualitative study of 32 premenopausal adult women with polycystic ovary syndrome (diagnosis confirmed by Rotterdam criteria), aged between 18 and 45 years, recruited from a primary and secondary care setting.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>Thematic analysis of transcripts from 11 focus groups conducted between 2013‐2015.</jats:p></jats:sec><jats:sec><jats:title>Results/Findings</jats:title><jats:p>Women identified a range of concerns affecting personal and reproductive identity, health knowledge and beliefs: (1) delays and barriers to diagnosis; (2) general lack of empathy by the medical profession; (3) difficulty in accessing specialist referral; (4) lack of information from professionals; (5) inconsistent and sometimes unsatisfactory experiences with medications; (6) insufficient help and advice regarding in/fertility; (7) relative lack of awareness or concern about longer term risks such as diabetes; and (8) significant discrepancies between the beliefs of women with polycystic ovary syndrome and how they experienced the attitudes of healthcare professionals.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>There appears to be a divergence between women's experience and attitudes of healthcare professionals. The diagnosis, support and lived experience of women with polycystic ovary syndrome could be enhanced by better professional recognition of these concerns, improved knowledge and communication about polycystic ovary syndrome and better access to support and specialist advice.</jats:p></jats:sec>

dc.format.extent2318-2326
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoen
dc.publisherWiley
dc.subjectbeliefs
dc.subjectdiagnosis
dc.subjectempathy
dc.subjectknowledge
dc.subjectlived experience
dc.subjectlong-term risks
dc.subjectpolycystic ovary syndrome
dc.subjectqualitative study
dc.titleThe diagnosis and lived experience of polycystic ovary syndrome: A qualitative study
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000410551700008&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008
plymouth.issue10
plymouth.volume73
plymouth.publication-statusPublished online
plymouth.journalJournal of Advanced Nursing
dc.identifier.doi10.1111/jan.13300
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Admin Group - R&I
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/PS - Research & Innovation
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Community and Primary Care
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeEngland
dcterms.dateAccepted2017-02-16
dc.rights.embargodate2018-5-15
dc.identifier.eissn1365-2648
dc.rights.embargoperiod12 months
rioxxterms.versionofrecord10.1111/jan.13300
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/under-embargo-all-rights-reserved
rioxxterms.licenseref.startdate2017-10
rioxxterms.typeJournal Article/Review
plymouth.oa-locationhttp://onlinelibrary.wiley.com/doi/10.1111/jan.13300/abstract;jsessionid=E55FE0483DE9F78983C465664EE5FFBE.f04t03


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