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dc.contributor.authorMarsden, Jonathan
dc.date.accessioned2017-03-16T11:28:28Z
dc.date.available2017-03-16T11:28:28Z
dc.date.issued2017-05-09
dc.identifier.issn1741-1645
dc.identifier.issn1759-779X
dc.identifier.urihttp://hdl.handle.net/10026.1/8644
dc.description.abstract

People with Charcot Marie Tooth disease (CMT) have impairments of balance and may fall more frequently than those without the condition. This qualitative study aimed to explore the experiences of falling and poor balance through focus group interviews. Participants were recruited through local and national meetings of the CMT United Kingdom support group. Three focus groups took place, including 25 adults with CMT in total. Thematic analysis revealed five main themes: frequent falling; cognitive burden of walking; environmental issues; external support; getting off the floor; perception of others. Participants described the physical issues of poor balance and falling, such as frequency, challenging physical environments and difficulty getting up after a fall. In addition, fear and embarrassment were discussed along with the impact on daily activities and participation. Physical and psychological factors need to be considered when designing falls management interventions for this group.

dc.format.extent306-310
dc.languageen
dc.language.isoen
dc.publisherMark Allen Group
dc.titleThe experience of falls and balance impairment for people with Charcot Marie Tooth disease
dc.typejournal-article
dc.typeJournal Article
plymouth.issue7
plymouth.volume24
plymouth.publication-statusPublished
plymouth.journalInternational Journal of Therapy and Rehabilitation
dc.identifier.doi10.12968/ijtr.2017.24.7.306
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/School of Health Professions
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Applied Parkinson's Research
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dcterms.dateAccepted2017-03-14
dc.identifier.eissn1759-779X
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.12968/ijtr.2017.24.7.306
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2017-05-09
rioxxterms.typeJournal Article/Review


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