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dc.contributor.authorSkirton, Heather
dc.contributor.authorPatch, C
dc.contributor.authorVoelckel, M-A
dc.date.accessioned2017-02-22T17:30:07Z
dc.date.available2017-02-22T17:30:07Z
dc.date.issued2010-12
dc.identifier.issn1868-310X
dc.identifier.issn1868-6001
dc.identifier.urihttp://hdl.handle.net/10026.1/8556
dc.description.abstract

The profession of genetic counselling is developing in Europe in response to the increased need for genetic healthcare. Standards of education and professional practice are needed to ensure that patients are provided with genetic counselling of an appropriate quality. However, such standards need to be relevant to practitioners in many different national and healthcare settings. In order to develop appropriate standards and a code of practice to guide professionals in Europe, we formed a community of practice that includes genetic nurses and counsellors, plus other interested health professionals, from 23 European countries. With reference to the European core competences for genetic counsellors, the members of the network developed a set of professional standards for practice, educational standards and a code of practice. It is strongly suggested that the title genetic counsellor should become a protected title in Europe and that practitioners are educated via a master level degree in genetic counselling. These standards have been approved by the members of the network and the existing professional national societies for genetic nurses and counsellors. They provide a foundation for building the profession of genetic counselling in Europe and for provision of equitable care across European countries. Further work is now needed to ensure that appropriate educational opportunities exist to train practitioners and that clinical teams utilise the expertise of these professionals appropriately to enhance the care offered to families at risk of or affected by genetic conditions.

dc.format.extent169-173
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoeng
dc.publisherSpringer Science and Business Media LLC
dc.subjectGenetics
dc.subject7.3 Management and decision making
dc.titleUsing a community of practice to develop standards of practice and education for genetic counsellors in Europe
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/22460299
plymouth.issue4
plymouth.volume1
plymouth.publication-statusPublished
plymouth.journalJournal of Community Genetics
dc.identifier.doi10.1007/s12687-010-0024-y
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
dc.publisher.placeGermany
dcterms.dateAccepted2010-09-26
dc.identifier.eissn1868-6001
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.1007/s12687-010-0024-y
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2010-12
rioxxterms.typeJournal Article/Review


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