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dc.contributor.authorCarroll, Camille
dc.contributor.authorPalmer, A
dc.contributor.authorCosby, C
dc.contributor.authorZajicek, J
dc.date.accessioned2015-07-29T09:24:46Z
dc.date.available2015-07-29T09:24:46Z
dc.date.issued2012-06
dc.identifier.issn1470-2118
dc.identifier.issn1473-4893
dc.identifier.urihttp://hdl.handle.net/10026.1/3484
dc.description.abstract

Promotion of research is a key strategy of the National Health Service (NHS). Currently, many patients are not afforded the opportunity to participate in clinical studies. A register of research-interested patients has the potential to maximise inclusivity. We have established a register of research-interested patients with Parkinson's disease within the South West of England, with pragmatic inclusion criteria and multiple recruitment routes. We undertook an analysis of the register, investigation of its utility as a recruitment tool and a survey of recruiters. There were 529 active participants; 30% were self-referred and 70% were recruited by a healthcare practitioner. Response rate to annual questionnaires was 86.5%. Staff time required for pack preparation, recruitment and data entry was 15 min per new recruit and 5 min per follow-up questionnaire. In total, 85% of recruiters viewed the register positively. A single mailing to participants resulted in a recruitment rate that significantly exceeded that achieved by traditional recruitment methods.

dc.format.extent210-215
dc.format.mediumPrint
dc.languageen
dc.language.isoeng
dc.publisherRoyal College of Physicians
dc.subjectAged
dc.subjectBiomedical Research
dc.subjectClinical Trials as Topic
dc.subjectFemale
dc.subjectHumans
dc.subjectMale
dc.subjectParkinson Disease
dc.subjectPatient Participation
dc.subjectPatient Selection
dc.subjectProgram Development
dc.subjectRegistries
dc.subjectUnited Kingdom
dc.titleAnalysis and validation of a Parkinson's disease register as a recruitment tool for clinical studies
dc.typejournal-article
dc.typeJournal Article
dc.typeResearch Support, Non-U.S. Gov't
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/22783770
plymouth.issue3
plymouth.volume12
plymouth.publication-statusPublished
plymouth.journalClinical Medicine
dc.identifier.doi10.7861/clinmedicine.12-3-210
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Applied Parkinson's Research
plymouth.organisational-group/Plymouth/Research Groups/FoH - Community and Primary Care
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeEngland
dc.identifier.eissn1473-4893
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.7861/clinmedicine.12-3-210
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.typeJournal Article/Review


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