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dc.contributor.authorRichfield, EW
dc.contributor.authorAllgar, V
dc.contributor.authorGirgis, A
dc.contributor.authorJohnson, MJ
dc.date.accessioned2023-02-07T10:17:16Z
dc.date.issued2022-07-26
dc.identifier.issn2045-435X
dc.identifier.issn2045-4368
dc.identifier.urihttp://hdl.handle.net/10026.1/20246
dc.description.abstract

OBJECTIVE: Parkinson's disease is a progressive, life-limiting disease, which benefits from structured palliative care. Systematic recognition and triage of needs helps facilitate care, allows focused referral to specialist palliative care and aids sustainability of services. Existing palliative care tools for Parkinson's are patient/caregiver completed and focus on quantification rather than identification of the need. The Needs Assessment Tool: Progressive Disease in Cancer was designed for rapid identification of unmet needs in cancer. We describe adaptation and psychometric testing of the tool for Parkinson's disease (NAT:Parkinson's disease). METHODS: Set in secondary care, Parkinson's disease outpatient clinics in the UK, this study included people with Parkinson's, age >18, including all disease stages. People with atypical Parkinsonian syndromes were excluded. Adaptation was made using systematic review and focus groups. Construct validity was tested in 50 consecutive patients against established patient and caregiver measures, analysed with Kendall's Tau B. Inter-rater reliability, using video consultations, were calculated in broad range of clinicians involved in Parkinson's disease care using a weighted kappa; 0-0.2=slight, 0.21-0.40=fair, 0.41-0.60=moderate, 0.61-0.80=substantial and p<0.05 indicative of statistically significant agreement. RESULTS: Validity was substantial for two, moderate for five and fair for four constructs. Inter-rater reliability was substantial for one, moderate for three and fair for six constructs. Two constructs failing to demonstrate fair reliability did show very high percentage agreement. CONCLUSION: Findings support the suitability of the NAT:Parkinson's disease for everyday clinical use in the identification and triage of unmet palliative need for people with Parkinson's disease.

dc.format.extent431-438
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoeng
dc.publisherBMJ
dc.subjectNeurological conditions
dc.subjectSymptoms and symptom management
dc.subjectClinical assessment
dc.subjectChronic conditions
dc.subjectSupportive care
dc.titleParkinson’s disease – palliative care needs assessment tool: adaptation and psychometric testing
dc.typejournal-article
dc.typeArticle
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/35882517
plymouth.issue4
plymouth.volume12
plymouth.publisher-urlhttp://dx.doi.org/10.1136/spcare-2021-003447
plymouth.publication-statusPublished
plymouth.journalBMJ Supportive &amp; Palliative Care
dc.identifier.doi10.1136/spcare-2021-003447
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA01 Clinical Medicine
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeEngland
dcterms.dateAccepted2022-06-24
dc.rights.embargodate2023-2-9
dc.identifier.eissn2045-4368
rioxxterms.versionofrecord10.1136/spcare-2021-003447
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2022-07-26
rioxxterms.typeJournal Article/Review


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