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dc.contributor.authorBaines, R
dc.contributor.authorBradwell, Hannah
dc.contributor.authorEdwards, K
dc.contributor.authorStevens, Sebastian
dc.contributor.authorPrime, S
dc.contributor.authorTredinnick‐Rowe, J
dc.contributor.authorSibley, M
dc.contributor.authorChatterjee, Arunangsu
dc.date.accessioned2022-06-30T09:57:55Z
dc.date.issued2022-05-08
dc.identifier.issn1369-6513
dc.identifier.issn1369-7625
dc.identifier.urihttp://hdl.handle.net/10026.1/19361
dc.description.abstract

<jats:title>Abstract</jats:title><jats:sec><jats:title>Introduction</jats:title><jats:p>The importance of meaningfully involving patients and the public in digital health innovation is widely acknowledged, but often poorly understood. This review, therefore, sought to explore how patients and the public are involved in digital health innovation and to identify factors that support and inhibit meaningful patient and public involvement (PPI) in digital health innovation, implementation and evaluation.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>Searches were undertaken from 2010 to July 2020 in the electronic databases MEDLINE, EMBASE, PsycINFO, CINAHL, Scopus and ACM Digital Library. Grey literature searches were also undertaken using the Patient Experience Library database and Google Scholar.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Of the 10,540 articles identified, 433 were included. The majority of included articles were published in the United States, United Kingdom, Canada and Australia, with representation from 42 countries highlighting the international relevance of PPI in digital health. 112 topic areas where PPI had reportedly taken place were identified. Areas most often described included cancer (<jats:italic>n</jats:italic> = 50), mental health (<jats:italic>n</jats:italic> = 43), diabetes (<jats:italic>n</jats:italic> = 26) and long‐term conditions (<jats:italic>n</jats:italic> = 19). Interestingly, over 133 terms were used to describe PPI; few were explicitly defined. Patients were often most involved in the final, passive stages of an innovation journey, for example, usability testing, where the ability to proactively influence change was severely limited. Common barriers to achieving meaningful PPI included data privacy and security concerns, not involving patients early enough and lack of trust. Suggested enablers were often designed to counteract such challenges.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>PPI is largely viewed as valuable and essential in digital health innovation, but rarely practised. Several barriers exist for both innovators and patients, which currently limits the quality, frequency and duration of PPI in digital health innovation, although improvements have been made in the past decade. Some reported barriers and enablers such as the importance of data privacy and security appear to be unique to PPI in digital innovation. Greater efforts should be made to support innovators and patients to become meaningfully involved in digital health innovations from the outset, given its reported benefits and impacts. Stakeholder consensus on the principles that underpin meaningful PPI in digital health innovation would be helpful in providing evidence‐based guidance on how to achieve this.</jats:p></jats:sec><jats:sec><jats:title>Patient or Public Contribution</jats:title><jats:p>This review has received extensive patient and public contributions with a representative from the Patient Experience Library involved throughout the review's conception, from design (including suggested revisions to the search strategy) through to article production and dissemination. Other areas of patient and public contributor involvement include contributing to the inductive thematic analysis process, refining the thematic framework and finalizing theme wording, helping to ensure relevance, value and meaning from a patient perspective. Findings from this review have also been presented to a variety of stakeholders including patients, patient advocates and clinicians through a series of focus groups and webinars. Given their extensive involvement, the representative from the Patient Experience Library is rightly included as an author of this review.</jats:p></jats:sec>

dc.format.extent1232-1245
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoeng
dc.publisherWiley Open Access
dc.subjectcodesign
dc.subjectdigital health
dc.subjectdigital innovation
dc.subjectehealth
dc.subjectpatient and public involvement
dc.subjectsystematic review
dc.titleMeaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review
dc.typejournal-article
dc.typeJournal Article
dc.typeReview
dc.typeSystematic Review
plymouth.author-urlhttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000791969600001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008
plymouth.issue4
plymouth.volume25
plymouth.publication-statusPublished
plymouth.journalHealth Expectations
dc.identifier.doi10.1111/hex.13506
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/Faculty of Health/School of Nursing and Midwifery
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA23 Education
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Community and Primary Care
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeEngland
dcterms.dateAccepted2022-04-03
dc.rights.embargodate2022-7-1
dc.identifier.eissn1369-7625
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.1111/hex.13506
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2022-05-08
rioxxterms.typeJournal Article/Review
plymouth.funderE-Health Productivity & Innovation in Cornwall (EPIC2)::European Regional Development Fund


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