Show simple item record

dc.contributor.authorZhang, R
dc.contributor.authorTang, Q
dc.contributor.authorZhu, L-H
dc.contributor.authorPeng, MX
dc.contributor.authorZhang, N
dc.contributor.authorXiong, EY
dc.contributor.authorChen, HM
dc.contributor.authorChen, LK
dc.contributor.authorLuo, D
dc.contributor.authorLi, X
dc.contributor.authorLatour, J
dc.identifier.otherARTN 870382

<jats:sec><jats:title>Background:</jats:title><jats:p>Neonatal death often occurs in tertiary Neonatal Intensive Care Units (NICUs). In China, end-of-life-care (EOLC) does not always involve parents.</jats:p></jats:sec><jats:sec><jats:title>Aim</jats:title><jats:p>The aim of this study is to evaluate a parent support intervention to integrate parents at the end of life of their infant in the NICU.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>A quasi-experimental study using a non-randomized clinical trial design was conducted between May 2020 and September 2021. Participants were infants in an EOLC pathway in the NICU and their parents. Parents were allocated into a family supportive EOLC intervention group or a standard EOLC group based on their wishes. The primary outcomes depression (Edinburgh Postnatal Depression Scale for mothers; Hamilton Depression rating scale for fathers) and Satisfaction with Care were measured 1 week after infants' death. Student <jats:italic>t</jats:italic>-test for continuous variables and the Chi-square test categorical variables were used in the statistical analysis.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In the study period, 62 infants died and 45 infants and 90 parents were enrolled; intervention group 20 infants, standard EOLC group 25 infants. The most common causes of death in both groups were congenital abnormalities (<jats:italic>n</jats:italic> = 20, 44%). Mean gestational age of infants between the family supportive EOLC group and standard EOLC group was 31.45 vs. 33.8 weeks (<jats:italic>p</jats:italic> = 0.234). Parents between both groups did not differ in terms of age, delivery of infant, and economic status. In the family support group, higher education levels were observed among mother (<jats:italic>p</jats:italic> = 0.026) and fathers (<jats:italic>p</jats:italic> = 0.020). Both mothers and fathers in the family supportive EOLC group had less depression compared to the standard EOLC groups; mothers (mean 6.90 vs. 7.56; <jats:italic>p</jats:italic> = 0.017) and fathers (mean 20.7 vs. 23.1; <jats:italic>p</jats:italic> &amp;lt; 0.001). Parents reported higher satisfaction in the family supportive EOLC group (mean 88.9 vs. 86.6; <jats:italic>p</jats:italic> &amp;lt; 0.001).</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>Supporting parents in EOLC in Chinese NICUs might decreased their depression and increase satisfaction after the death of their infant. Future research needs to focus on long-term effects and expand on larger populations with different cultural backgrounds.</jats:p></jats:sec><jats:sec><jats:title>Clinical Trial Registration</jats:title><jats:p><jats:ext-link></jats:ext-link>, identifier: NCT05270915.</jats:p></jats:sec>

dc.publisherFrontiers Media
dc.subjectneonatal death
dc.subjectend-of-life care
dc.subjectNeonatal Intensive Care Unit
dc.subjectfamily-centered care
dc.titleTesting a family supportive end of life care intervention in a Chinese neonatal intensive care unit: A quasi- experimental study with a non-randomized controlled trial design
plymouth.publication-statusPublished online
plymouth.journalFrontiers in Pediatrics
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/School of Nursing and Midwifery
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.rights.embargoperiodNot known
rioxxterms.typeJournal Article/Review

Files in this item


This item appears in the following Collection(s)

Show simple item record

All items in PEARL are protected by copyright law.
Author manuscripts deposited to comply with open access mandates are made available in accordance with publisher policies. Please cite only the published version using the details provided on the item record or document. In the absence of an open licence (e.g. Creative Commons), permissions for further reuse of content should be sought from the publisher or author.
Theme by 
Atmire NV