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dc.contributor.authorGriffiths, Sarah
dc.contributor.authorWeston, L
dc.contributor.authorMorgan-Trimmer, S
dc.contributor.authorWheat, Hannah
dc.contributor.authorGude, A
dc.contributor.authorManger, L
dc.contributor.authorOh, Tomasina M
dc.contributor.authorClarkson, P
dc.contributor.authorQuinn, Cath
dc.contributor.authorSheaff, Rod
dc.contributor.authorClark, M
dc.contributor.authorSherriff, I
dc.contributor.authorByng, Richard
dc.date.accessioned2022-04-22T12:25:47Z
dc.date.available2022-04-22T12:25:47Z
dc.date.issued2022-01
dc.identifier.issn1609-4069
dc.identifier.issn1609-4069
dc.identifier.otherARTN 16094069221077521
dc.identifier.urihttp://hdl.handle.net/10026.1/19052
dc.description.abstract

<jats:p> ‘Dementia - Personalised Care Team’ (D-PACT) is a five-year NIHR funded programme, using realist methods to develop and evaluate a complex, person-centred intervention for people with dementia and their carers. During the early project stages, we engaged with multiple stakeholders, including people with dementia and their carers, to develop an initial programme theory (IPT) – into an elaborated programme theory (EPT), by helping to uncover intervention mechanisms leading to outcomes in specific contexts. Realist research methods for developing programme theories are under-reported. In addition, there is a paucity of practical guidance on how to engage underserved and vulnerable populations in complex interventions programme theory development. We attend to these gaps, providing a worked example of how we meaningfully engaged people living with dementia and carers, alongside field experts, as stakeholders in this process. Our IPT theory building included multi-stakeholder primary research exercises and meetings with PPI contributors and an Expert Reference Group. We adapted interview schedules, and used visual resources and scenario-based activities, to support stakeholders to think in a ‘realist’ way. Using realist and thematic analyses led to hypothesis-building of causal mechanisms. Sharing findings with stakeholders led to further refinement of the intervention design, ready for testing in a subsequent feasibility study. We found that, despite the cognitive challenges associated with dementia, innovative methods of engagement can enable this stakeholder group to understand the realist approach and provide a platform through which to share their experiences. Taking a highly flexible and unhurried approach, led to novel insights into the complexities of person-centred dementia support. We argue for more detailed methodological guidance, based on realist principles, on how to collaborate with underrepresented populations to rigorously gain insights as to what is likely to make a difference and refine initial programme theory. </jats:p>

dc.format.extent160940692210775-160940692210775
dc.languageen
dc.language.isoen
dc.publisherSAGE Publications
dc.subjectMethods in qualitative inquiry
dc.subjectfocus groups
dc.subjectmixed methods
dc.subjectrealist phenomenology
dc.subjectcritical realism
dc.titleEngaging Stakeholders in Realist Programme Theory Building: Insights from the Prospective Phase of a Primary Care Dementia Support Study
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000765331000001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008
plymouth.volume21
plymouth.publication-statusPublished
plymouth.journalInternational Journal of Qualitative Methods
dc.identifier.doi10.1177/16094069221077521
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA20 Social Work and Social Policy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Community and Primary Care
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
plymouth.organisational-group/Plymouth/Users by role/Researchers in ResearchFish submission
dc.identifier.eissn1609-4069
dc.rights.embargoperiodNot known
rioxxterms.funderNational Institute for Health Research
rioxxterms.identifier.projectDementia - Person Aligned Care Team (D-PACT)
rioxxterms.versionofrecord10.1177/16094069221077521
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.typeJournal Article/Review
plymouth.funderDementia - Person Aligned Care Team (D-PACT)::National Institute for Health Research


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