Family-Centered Care at Pediatric Cardiac Intensive Care Units in Germany and the Relationship with Parent and Infant Well-Being: A Study Protocol
dc.contributor.author | Ferentzi, H | |
dc.contributor.author | Rippe, RCA | |
dc.contributor.author | Latour, Jos M | |
dc.contributor.author | Schubert, S | |
dc.contributor.author | Girch, A | |
dc.contributor.author | Stocker, MJ | |
dc.contributor.author | Pfitzer, C | |
dc.contributor.author | Photiadis, J | |
dc.contributor.author | Sandica, E | |
dc.contributor.author | Berger, F | |
dc.contributor.author | Schmitt, KRL | |
dc.date.accessioned | 2021-08-16T10:14:31Z | |
dc.date.issued | 2021-08-12 | |
dc.identifier.issn | 2296-2360 | |
dc.identifier.issn | 2296-2360 | |
dc.identifier.other | ARTN 666904 | |
dc.identifier.uri | http://hdl.handle.net/10026.1/17593 | |
dc.description.abstract |
<jats:p><jats:bold>Rationale and Aim:</jats:bold> Infants with Congenital Heart Disease (CHD) are at risk for neurodevelopmental delays, emotional, social and behavioral difficulties. Hospitalization early in life and associated stressors may contribute to these challenges. Family-centered Care (FCC) is a health care approach that is respectful of and responsive to the needs and values of a family and has shown to be effective in improving health outcomes of premature infants, as well as the mental well-being of their parents. However, there is limited empirical data available on FCC practices in pediatric cardiology and associations with parent and infant outcomes.</jats:p><jats:p><jats:bold>Methods and Analysis:</jats:bold> In this cross-sectional study, we will explore FCC practices at two pediatric cardiac intensive care units in Germany, assess parent satisfaction with FCC, and investigate associations with parental mental well-being and parenting stress, as well as infant physical and mental well-being. We will collect data of 280 infants with CHD and their families. Data will be analyzed using multivariate statistics and multilevel modeling.</jats:p><jats:p><jats:bold>Implications and Dissemination:</jats:bold> The study protocol was approved by the medical ethics committees of both partner sites and registered with the German registry for clinical trials (NR DRKS00023964). This study serves as a first step to investigate FCC practices in a pediatric cardiology setting, providing insight into the relationship between FCC and parent and infant outcomes in a population of infants with CHD. Results will be disseminated in peer-reviewed journals.</jats:p> | |
dc.format.extent | 666904- | |
dc.format.medium | Electronic-eCollection | |
dc.language | eng | |
dc.language.iso | en | |
dc.publisher | Frontiers Media | |
dc.subject | intensive care unit | |
dc.subject | parental mental well-being | |
dc.subject | infant physical well-being | |
dc.subject | children | |
dc.subject | congenital heart disease | |
dc.subject | infant mental well-being | |
dc.subject | family-centered care | |
dc.subject | pediatric cardiology | |
dc.title | Family-Centered Care at Pediatric Cardiac Intensive Care Units in Germany and the Relationship with Parent and Infant Well-Being: A Study Protocol | |
dc.type | journal-article | |
dc.type | Journal Article | |
plymouth.author-url | https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000690890400001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008 | |
plymouth.volume | 9 | |
plymouth.publication-status | Published online | |
plymouth.journal | Frontiers in Pediatrics | |
dc.identifier.doi | 10.3389/fped.2021.666904 | |
plymouth.organisational-group | /Plymouth | |
plymouth.organisational-group | /Plymouth/Faculty of Health | |
plymouth.organisational-group | /Plymouth/Faculty of Health/School of Nursing and Midwifery | |
plymouth.organisational-group | /Plymouth/REF 2021 Researchers by UoA | |
plymouth.organisational-group | /Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy | |
plymouth.organisational-group | /Plymouth/Research Groups | |
plymouth.organisational-group | /Plymouth/Research Groups/Institute of Health and Community | |
plymouth.organisational-group | /Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR) | |
plymouth.organisational-group | /Plymouth/Users by role | |
plymouth.organisational-group | /Plymouth/Users by role/Academics | |
dc.publisher.place | Switzerland | |
dcterms.dateAccepted | 2021-07-12 | |
dc.rights.embargodate | 2021-8-27 | |
dc.identifier.eissn | 2296-2360 | |
dc.rights.embargoperiod | Not known | |
rioxxterms.versionofrecord | 10.3389/fped.2021.666904 | |
rioxxterms.licenseref.uri | http://www.rioxx.net/licenses/all-rights-reserved | |
rioxxterms.licenseref.startdate | 2021-08-12 | |
rioxxterms.type | Journal Article/Review |