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dc.contributor.authorFerentzi, H
dc.contributor.authorRippe, RCA
dc.contributor.authorLatour, Jos M
dc.contributor.authorSchubert, S
dc.contributor.authorGirch, A
dc.contributor.authorStocker, MJ
dc.contributor.authorPfitzer, C
dc.contributor.authorPhotiadis, J
dc.contributor.authorSandica, E
dc.contributor.authorBerger, F
dc.contributor.authorSchmitt, KRL
dc.date.accessioned2021-08-16T10:14:31Z
dc.date.issued2021-08-12
dc.identifier.issn2296-2360
dc.identifier.issn2296-2360
dc.identifier.otherARTN 666904
dc.identifier.urihttp://hdl.handle.net/10026.1/17593
dc.description.abstract

<jats:p><jats:bold>Rationale and Aim:</jats:bold> Infants with Congenital Heart Disease (CHD) are at risk for neurodevelopmental delays, emotional, social and behavioral difficulties. Hospitalization early in life and associated stressors may contribute to these challenges. Family-centered Care (FCC) is a health care approach that is respectful of and responsive to the needs and values of a family and has shown to be effective in improving health outcomes of premature infants, as well as the mental well-being of their parents. However, there is limited empirical data available on FCC practices in pediatric cardiology and associations with parent and infant outcomes.</jats:p><jats:p><jats:bold>Methods and Analysis:</jats:bold> In this cross-sectional study, we will explore FCC practices at two pediatric cardiac intensive care units in Germany, assess parent satisfaction with FCC, and investigate associations with parental mental well-being and parenting stress, as well as infant physical and mental well-being. We will collect data of 280 infants with CHD and their families. Data will be analyzed using multivariate statistics and multilevel modeling.</jats:p><jats:p><jats:bold>Implications and Dissemination:</jats:bold> The study protocol was approved by the medical ethics committees of both partner sites and registered with the German registry for clinical trials (NR DRKS00023964). This study serves as a first step to investigate FCC practices in a pediatric cardiology setting, providing insight into the relationship between FCC and parent and infant outcomes in a population of infants with CHD. Results will be disseminated in peer-reviewed journals.</jats:p>

dc.format.extent666904-
dc.format.mediumElectronic-eCollection
dc.languageeng
dc.language.isoen
dc.publisherFrontiers Media
dc.subjectintensive care unit
dc.subjectparental mental well-being
dc.subjectinfant physical well-being
dc.subjectchildren
dc.subjectcongenital heart disease
dc.subjectinfant mental well-being
dc.subjectfamily-centered care
dc.subjectpediatric cardiology
dc.titleFamily-Centered Care at Pediatric Cardiac Intensive Care Units in Germany and the Relationship with Parent and Infant Well-Being: A Study Protocol
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000690890400001&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008
plymouth.volume9
plymouth.publication-statusPublished online
plymouth.journalFrontiers in Pediatrics
dc.identifier.doi10.3389/fped.2021.666904
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/School of Nursing and Midwifery
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeSwitzerland
dcterms.dateAccepted2021-07-12
dc.rights.embargodate2021-8-27
dc.identifier.eissn2296-2360
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.3389/fped.2021.666904
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2021-08-12
rioxxterms.typeJournal Article/Review


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