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dc.contributor.authorWogden, F
dc.contributor.authorNorman, Alyson
dc.contributor.authorDibben, L
dc.date.accessioned2019-04-12T10:24:08Z
dc.date.issued2019-05-13
dc.identifier.issn1055-6656
dc.identifier.issn1545-1569
dc.identifier.urihttp://hdl.handle.net/10026.1/13704
dc.description.abstract

<jats:sec><jats:title>Objective:</jats:title><jats:p> Limited research has studied the involvement of children in medical decision-making. The aim of the study was to understand the involvement of adolescents with cleft lip and/or palate (CL/P) in decisions about elective surgeries and treatments. </jats:p></jats:sec><jats:sec><jats:title>Design:</jats:title><jats:p> Parents and professionals completed mixed-methods questionnaires about the degree to which children had been involved in choices about elective treatments. Data were analyzed using content analysis. Young people aged 12 to 25 years were asked to take part in semistructured interviews. The data were analyzed using inductive thematic analysis. </jats:p></jats:sec><jats:sec><jats:title>Setting:</jats:title><jats:p> Questionnaire data collection took place online, and interview data were collected via messenger or telephone-based interviews. </jats:p></jats:sec><jats:sec><jats:title>Participants:</jats:title><jats:p> The study employed 30 participants; 11 young people (3 male, 8 female), 17 parents (13 mothers, 4 fathers), and 5 professionals (2 surgeons, 2 speech and language therapists, and 1 pediatric dentist). </jats:p></jats:sec><jats:sec><jats:title>Results:</jats:title><jats:p> Five main themes were identified. These reflected participants feeling that with increasing age should come increased involvement in decision-making and that it was important for adolescents to “have a voice” during decision-making. Parents, peers, and health professionals were identified as influencing decisions. Most adolescents reported overall satisfaction with their involvement in decision-making but sometimes felt “left in the dark” by professionals or under pressure from parents. A desire to improve speech and/or appearance was as an area where adolescents wanted to be more involved in decision-making. </jats:p></jats:sec><jats:sec><jats:title>Conclusions:</jats:title><jats:p> Shared decision-making is an important factor for psychological well-being by promoting autonomy and self-esteem among adolescents with CL/P. </jats:p></jats:sec>

dc.format.extent1220-1229
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoen
dc.publisherSAGE Publications
dc.subjectpsychosocial adjustment
dc.subjectquality of life
dc.subjectethics
dc.subjecthealth policies
dc.titleTreatment choice in Adolescents with Cleft Lip and/or Palate: the importance of Shared Decision-Making
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000484912400012&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008
plymouth.issue9
plymouth.volume56
plymouth.publication-statusPublished
plymouth.journalCleft Palate-Craniofacial Journal
dc.identifier.doi10.1177/1055665619848256
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/School of Psychology
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA04 Psychology, Psychiatry and Neuroscience
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/Centre for Brain, Cognition and Behaviour (CBCB)
plymouth.organisational-group/Plymouth/Research Groups/Centre for Brain, Cognition and Behaviour (CBCB)/Behaviour
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
dc.publisher.placeUnited States
dcterms.dateAccepted2019-04-12
dc.rights.embargodate2019-9-14
dc.identifier.eissn1545-1569
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.1177/1055665619848256
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2019-05-13
rioxxterms.typeJournal Article/Review


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