Treatment choice in Adolescents with Cleft Lip and/or Palate: the importance of Shared Decision-Making
dc.contributor.author | Wogden, F | |
dc.contributor.author | Norman, Alyson | |
dc.contributor.author | Dibben, L | |
dc.date.accessioned | 2019-04-12T10:24:08Z | |
dc.date.issued | 2019-05-13 | |
dc.identifier.issn | 1055-6656 | |
dc.identifier.issn | 1545-1569 | |
dc.identifier.uri | http://hdl.handle.net/10026.1/13704 | |
dc.description.abstract |
<jats:sec><jats:title>Objective:</jats:title><jats:p> Limited research has studied the involvement of children in medical decision-making. The aim of the study was to understand the involvement of adolescents with cleft lip and/or palate (CL/P) in decisions about elective surgeries and treatments. </jats:p></jats:sec><jats:sec><jats:title>Design:</jats:title><jats:p> Parents and professionals completed mixed-methods questionnaires about the degree to which children had been involved in choices about elective treatments. Data were analyzed using content analysis. Young people aged 12 to 25 years were asked to take part in semistructured interviews. The data were analyzed using inductive thematic analysis. </jats:p></jats:sec><jats:sec><jats:title>Setting:</jats:title><jats:p> Questionnaire data collection took place online, and interview data were collected via messenger or telephone-based interviews. </jats:p></jats:sec><jats:sec><jats:title>Participants:</jats:title><jats:p> The study employed 30 participants; 11 young people (3 male, 8 female), 17 parents (13 mothers, 4 fathers), and 5 professionals (2 surgeons, 2 speech and language therapists, and 1 pediatric dentist). </jats:p></jats:sec><jats:sec><jats:title>Results:</jats:title><jats:p> Five main themes were identified. These reflected participants feeling that with increasing age should come increased involvement in decision-making and that it was important for adolescents to “have a voice” during decision-making. Parents, peers, and health professionals were identified as influencing decisions. Most adolescents reported overall satisfaction with their involvement in decision-making but sometimes felt “left in the dark” by professionals or under pressure from parents. A desire to improve speech and/or appearance was as an area where adolescents wanted to be more involved in decision-making. </jats:p></jats:sec><jats:sec><jats:title>Conclusions:</jats:title><jats:p> Shared decision-making is an important factor for psychological well-being by promoting autonomy and self-esteem among adolescents with CL/P. </jats:p></jats:sec> | |
dc.format.extent | 1220-1229 | |
dc.format.medium | Print-Electronic | |
dc.language | en | |
dc.language.iso | en | |
dc.publisher | SAGE Publications | |
dc.subject | psychosocial adjustment | |
dc.subject | quality of life | |
dc.subject | ethics | |
dc.subject | health policies | |
dc.title | Treatment choice in Adolescents with Cleft Lip and/or Palate: the importance of Shared Decision-Making | |
dc.type | journal-article | |
dc.type | Journal Article | |
plymouth.author-url | https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000484912400012&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008 | |
plymouth.issue | 9 | |
plymouth.volume | 56 | |
plymouth.publication-status | Published | |
plymouth.journal | Cleft Palate-Craniofacial Journal | |
dc.identifier.doi | 10.1177/1055665619848256 | |
plymouth.organisational-group | /Plymouth | |
plymouth.organisational-group | /Plymouth/Faculty of Health | |
plymouth.organisational-group | /Plymouth/Faculty of Health/School of Psychology | |
plymouth.organisational-group | /Plymouth/REF 2021 Researchers by UoA | |
plymouth.organisational-group | /Plymouth/REF 2021 Researchers by UoA/UoA04 Psychology, Psychiatry and Neuroscience | |
plymouth.organisational-group | /Plymouth/Research Groups | |
plymouth.organisational-group | /Plymouth/Research Groups/Centre for Brain, Cognition and Behaviour (CBCB) | |
plymouth.organisational-group | /Plymouth/Research Groups/Centre for Brain, Cognition and Behaviour (CBCB)/Behaviour | |
plymouth.organisational-group | /Plymouth/Users by role | |
plymouth.organisational-group | /Plymouth/Users by role/Academics | |
dc.publisher.place | United States | |
dcterms.dateAccepted | 2019-04-12 | |
dc.rights.embargodate | 2019-9-14 | |
dc.identifier.eissn | 1545-1569 | |
dc.rights.embargoperiod | Not known | |
rioxxterms.versionofrecord | 10.1177/1055665619848256 | |
rioxxterms.licenseref.uri | http://www.rioxx.net/licenses/all-rights-reserved | |
rioxxterms.licenseref.startdate | 2019-05-13 | |
rioxxterms.type | Journal Article/Review |