International consensus on quality standards for brain health-focused care in multiple sclerosis.
dc.contributor.author | Hobart, J | |
dc.contributor.author | Bowen, A | |
dc.contributor.author | Pepper, G | |
dc.contributor.author | Crofts, H | |
dc.contributor.author | Eberhard, L | |
dc.contributor.author | Berger, T | |
dc.contributor.author | Boyko, A | |
dc.contributor.author | Boz, C | |
dc.contributor.author | Butzkueven, H | |
dc.contributor.author | Celius, EG | |
dc.contributor.author | Drulovic, J | |
dc.contributor.author | Flores, J | |
dc.contributor.author | Horáková, D | |
dc.contributor.author | Lebrun-Frénay, C | |
dc.contributor.author | Marrie, RA | |
dc.contributor.author | Overell, J | |
dc.contributor.author | Piehl, F | |
dc.contributor.author | Rasmussen, PV | |
dc.contributor.author | Sá, MJ | |
dc.contributor.author | Sîrbu, C-A | |
dc.contributor.author | Skromne, E | |
dc.contributor.author | Torkildsen, Ø | |
dc.contributor.author | van Pesch, V | |
dc.contributor.author | Vollmer, T | |
dc.contributor.author | Zakaria, M | |
dc.contributor.author | Ziemssen, T | |
dc.contributor.author | Giovannoni, G | |
dc.date.accessioned | 2018-11-13T13:12:54Z | |
dc.date.available | 2018-11-13T13:12:54Z | |
dc.date.issued | 2019-11 | |
dc.identifier.issn | 1352-4585 | |
dc.identifier.issn | 1477-0970 | |
dc.identifier.uri | http://hdl.handle.net/10026.1/12770 | |
dc.description.abstract |
BACKGROUND:: Time matters in multiple sclerosis (MS). Irreversible neural damage and cell loss occur from disease onset. The MS community has endorsed a management strategy of prompt diagnosis, timely intervention and regular proactive monitoring of treatment effectiveness and disease activity to improve outcomes in people with MS. OBJECTIVES:: We sought to develop internationally applicable quality standards for timely, brain health-focused MS care. METHODS:: A panel of MS specialist neurologists participated in an iterative, online, modified Delphi process to define 'core', 'achievable' and 'aspirational' time frames reflecting minimum, good and high care standards, respectively. A multidisciplinary Reviewing Group (MS nurses, people with MS, allied healthcare professionals) provided insights ensuring recommendations reflected perspectives from multiple stakeholders. RESULTS:: Twenty-one MS neurologists from 19 countries reached consensus on most core (25/27), achievable (25/27) and aspirational (22/27) time frames at the end of five rounds. Agreed standards cover six aspects of the care pathway: symptom onset, referral and diagnosis, treatment decisions, lifestyle, disease monitoring and managing new symptoms. CONCLUSION:: These quality standards for core, achievable and aspirational care provide MS teams with a three-level framework for service evaluation, benchmarking and improvement. They have the potential to produce a profound change in the care of people with MS. | |
dc.format.extent | 1352458518809326-1352458518809326 | |
dc.format.medium | Print-Electronic | |
dc.language | en | |
dc.language.iso | en | |
dc.publisher | SAGE Publications | |
dc.subject | Delphi technique | |
dc.subject | Multiple sclerosis | |
dc.subject | benchmarking | |
dc.subject | consensus | |
dc.subject | quality improvement | |
dc.subject | standards | |
dc.title | International consensus on quality standards for brain health-focused care in multiple sclerosis. | |
dc.type | journal-article | |
dc.type | Journal Article | |
dc.type | Research Support, Non-U.S. Gov't | |
plymouth.author-url | https://www.ncbi.nlm.nih.gov/pubmed/30381987 | |
plymouth.issue | 13 | |
plymouth.volume | 25 | |
plymouth.publication-status | Published | |
plymouth.journal | Multiple Sclerosis | |
dc.identifier.doi | 10.1177/1352458518809326 | |
plymouth.organisational-group | /Plymouth | |
plymouth.organisational-group | /Plymouth/Faculty of Health | |
plymouth.organisational-group | /Plymouth/Faculty of Health/Peninsula Medical School | |
plymouth.organisational-group | /Plymouth/REF 2021 Researchers by UoA | |
plymouth.organisational-group | /Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy | |
plymouth.organisational-group | /Plymouth/Research Groups | |
plymouth.organisational-group | /Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED) | |
plymouth.organisational-group | /Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS | |
plymouth.organisational-group | /Plymouth/Users by role | |
plymouth.organisational-group | /Plymouth/Users by role/Academics | |
dc.publisher.place | England | |
dcterms.dateAccepted | 2018-10-05 | |
dc.rights.embargodate | 2019-1-11 | |
dc.identifier.eissn | 1477-0970 | |
dc.rights.embargoperiod | Not known | |
rioxxterms.versionofrecord | 10.1177/1352458518809326 | |
rioxxterms.licenseref.uri | http://www.rioxx.net/licenses/all-rights-reserved | |
rioxxterms.type | Journal Article/Review |