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dc.contributor.authorShankar, R
dc.contributor.authorNewman, C
dc.contributor.authorHanna, J
dc.contributor.authorashton, J
dc.contributor.authorJory, C
dc.contributor.authorMcLean, B
dc.contributor.authorAnderson, T
dc.contributor.authorWalker, M
dc.contributor.authorcox, D
dc.contributor.authorEwins, L
dc.date.accessioned2018-08-14T08:50:53Z
dc.date.available2018-08-14T08:50:53Z
dc.date.issued2015
dc.identifier.issn2050-1315
dc.identifier.issn2050-1315
dc.identifier.urihttp://hdl.handle.net/10026.1/12146
dc.description.abstract

<jats:title>Abstract</jats:title><jats:p>This quality improvement project was inspired as an answer to a problem that intellectual disability teams have been struggling to manage whilst caring for people with epilepsy (PWE). The issue was that despite guidance to discuss the possibility of sudden unexpected death in epilepsy (SUDEP) be discussed with a newly diagnosed PWE this is rarely done. Additionally when, how, and what to discuss about SUDEP and reduce its risk is arbitrary, non-person centred, and with no structured evidence.</jats:p><jats:p>Prior to initiating changes a discussion of SUDEP was recorded in just 10% of PWE. We introduced a check-list to help identify risk factors for SUDEP. We then modified the check-list, and then used it via telehealth, a way of contacting patients and their carers over the phone using the check-list approach. Following interventions, discussions of SUDEP are now recorded in 80% of PWE. Feedback from patients, carers and primary and secondary care professionals has been positive.</jats:p><jats:p>We are now developing an app so that patients and carers can monitor their own risk factors, thus empowering them and increasing their knowledge and awareness of SUDEP.</jats:p>

dc.format.extentu208167.w3252-u208167.w3252
dc.format.mediumElectronic-eCollection
dc.languageen
dc.language.isoeng
dc.publisherBMJ
dc.subject4203 Health Services and Systems
dc.subject42 Health Sciences
dc.subjectNeurodegenerative
dc.subjectBrain Disorders
dc.subjectEpilepsy
dc.subjectNeurosciences
dc.subject7.1 Individual care needs
dc.subject8 Health and social care services research
dc.subject8.1 Organisation and delivery of services
dc.subject7 Management of diseases and conditions
dc.subjectNeurological
dc.titleKeeping patients with epilepsy safe: a surmountable challenge?
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/26734336
plymouth.issue1
plymouth.volume4
plymouth.publisher-urlhttp://dx.doi.org/10.1136/bmjquality.u208167.w3252
plymouth.publication-statusPublished
plymouth.journalBMJ Quality Improvement Reports
dc.identifier.doi10.1136/bmjquality.u208167.w3252
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS
plymouth.organisational-group/Plymouth/Users by role
dc.publisher.placeEngland
dc.identifier.eissn2050-1315
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.1136/bmjquality.u208167.w3252
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.typeJournal Article/Review


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