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dc.contributor.authorTaylor, C
dc.contributor.authorGill, Laura
dc.contributor.authorGibson, A
dc.contributor.authorByng, Richard
dc.contributor.authorQuinn, Cath
dc.date.accessioned2018-07-30T10:19:13Z
dc.date.issued2018-07-20
dc.identifier.issn1369-6513
dc.identifier.issn1369-7625
dc.identifier.urihttp://hdl.handle.net/10026.1/11950
dc.description.abstract

BACKGROUND: People subject to the criminal justice system often have substantially different life-experiences from the general population. Patient and public involvement (PPI) of "seldom heard" groups provides valuable experiential knowledge, enhancing research. OBJECTIVE: To share our jointly developed techniques to ensure the meaningful engagement and contribution of people with lived experience of the criminal justice system (PWLECJS) in research, trial science, intervention theory development and dissemination. METHODS: Commitment to adequate financial resources, appropriate staff skills and adequate time were combined with previous learning. PWLECJS were approached through local community organizations. A group was established and met fortnightly for ten months in an unthreatening environment and had a rolling membership. Ongoing engagement was promoted by the group taking responsibility for the rules, interactive and accessible activities, feeding back tangible impacts, ongoing contact, building a work ethic, joint celebrations, sessions with individual academic researchers and pro-actively managed endings. RESULTS: The Peer Researchers contributed to study documents, training academic researchers, research data collection and analysis, intervention delivery and theory development and trial science. The Peer Researchers gained in confidence and an improved sense of self-worth. The Academic Researchers gained skills, knowledge and an increased openness to being challenged. DISCUSSION AND CONCLUSIONS: PWLECJS can be meaningful included in health research and intervention development. The key elements required are listed. Challenges included differences in priorities for timescales and dissemination, resource limitations and the use of Peer Researchers' names. Further research is required to understand what might be of relevance for other "seldom heard" groups.

dc.format.extent1104-1110
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoen
dc.publisherWiley Open Access
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rightsAttribution-NoDerivatives 4.0 International
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.rights.urihttp://creativecommons.org/licenses/by-nd/4.0/
dc.subjecthealth research
dc.subjectintervention development
dc.subjectmental health
dc.subjectoffender health
dc.subjectpatient and public involvement
dc.subjectseldom heard
dc.titleEngaging "seldom heard" groups in research and intervention development: Offender mental health.
dc.typejournal-article
dc.typeJournal Article
dc.typeResearch Support, Non-U.S. Gov't
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/30030880
plymouth.issue6
plymouth.volume21
plymouth.publication-statusPublished
plymouth.journalHealth Expectations
dc.identifier.doi10.1111/hex.12807
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA20 Social Work and Social Policy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Community and Primary Care
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
plymouth.organisational-group/Plymouth/Users by role/Researchers in ResearchFish submission
dc.publisher.placeEngland
dcterms.dateAccepted2018-06-08
dc.rights.embargodate2018-8-3
dc.identifier.eissn1369-7625
dc.rights.embargoperiodNot known
rioxxterms.funderNational Institute for Health Research
rioxxterms.identifier.projectDeveloping and evaluating a collaborative care intervention for prisoners, with common mental health problems, near to and after release (Engager 2)
rioxxterms.versionofrecord10.1111/hex.12807
rioxxterms.licenseref.urihttp://creativecommons.org/licenses/by-nd/4.0/
rioxxterms.licenseref.startdate2018-07-20
rioxxterms.typeJournal Article/Review
plymouth.funderDeveloping and evaluating a collaborative care intervention for prisoners, with common mental health problems, near to and after release (Engager 2)::National Institute for Health Research


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