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dc.contributor.authorThorp, N
dc.contributor.authorstedmon, jacqueline
dc.contributor.authorLloyd, Helen
dc.date.accessioned2018-01-24T15:34:12Z
dc.date.available2018-01-24T15:34:12Z
dc.date.issued2018-03
dc.identifier.issn1354-4187
dc.identifier.issn1468-3156
dc.identifier.urihttp://hdl.handle.net/10026.1/10663
dc.description.abstract

Accessible summary: Four people with learning disability talked about what it was like when someone they cared about had died. They said that it was important they were included, but that it was hard. They said they carried on loving the person after they died and that they missed them. Abstract: Background Bereavement is a universal experience, yet little research has explored the lived experience of bereavement for people with learning disability (PWLD). Materials and methods Four PWLD were interviewed about their experience of bereavement. Data were analysed using interpretative phenomenological analysis. Results Four themes were identified: “Needing to know: Being included,” “Struggling to say: The emotional experience,” “Love after death: A continuing relationship” and “Missing their presence: The wider impact of death.”. Conclusions PWLD should have the opportunity to make informed choices about their level of involvement and to develop their emotional experience. PWLD should be supported to develop a continued bond with the deceased and the wider impact of their loss recognised.

dc.format.extent45-53
dc.languageen
dc.language.isoen
dc.publisherWiley
dc.subjectcontinuing bonds
dc.subjectexperience of bereavement
dc.subjectinterpretative phenomenological analysis
dc.subjectlearning disability
dc.title“I carry her in my heart”: An exploration of the experience of bereavement for people with learning disability
dc.typejournal-article
dc.typeJournal Article
plymouth.author-urlhttps://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000424222100007&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=11bb513d99f797142bcfeffcc58ea008
plymouth.issue1
plymouth.volume46
plymouth.publication-statusPublished
plymouth.journalBritish Journal of Learning Disabilities
dc.identifier.doi10.1111/bld.12212
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Users by role
dcterms.dateAccepted2017-12-11
dc.rights.embargodate2020-1-11
dc.identifier.eissn1468-3156
dc.rights.embargoperiodNot known
rioxxterms.versionofrecord10.1111/bld.12212
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2018-03
rioxxterms.typeJournal Article/Review


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