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dc.contributor.authorBernardes Delgado, M
dc.contributor.authorBurns, L
dc.contributor.authorQuinn, C
dc.contributor.authorMoles, D
dc.contributor.authorKay, E
dc.date.accessioned2018-01-10T09:50:36Z
dc.date.issued2018-06-08
dc.identifier.issn0007-0610
dc.identifier.issn1476-5373
dc.identifier.urihttp://hdl.handle.net/10026.1/10540
dc.description.abstract

Introduction: The oral cavity, in palliative care patients, is commonly the first site of discomfort and loss of function. Oral care, however, is often overlooked for these patients. Palliative oral care is a poorly researched area and the experiences of patients, their carers and relatives are seldom explored.

Aims: To explore the oral care experiences of palliative care patients, from the perspective of their carers and/or relatives.

Methods: Blogs and discussion forums, on public internet sites, were used as the data source. Data were analysed using thematic analysis.

Results: Eight blogs and eight discussion forums fulfilled the inclusion criteria and were analysed. Three main themes were identified: symptoms, procedures and emotions. Authors described oral symptoms that they could observe themselves and perceived as being distressing. There was an association between oral care procedures and the oral symptoms observed. However routine oral care procedures were poorly described.

Conclusion: The data on oral care provided by the blogs and discussion forums included was scarce. It provided, however, preliminary insights into this poorly researched area. In this group, the importance of oral care for terminally-ill patients was frequently overlooked until the person’s quality of life became compromised by their oral symptomatology.

dc.format.extent881-886
dc.format.mediumPrint-Electronic
dc.languageen
dc.language.isoen
dc.publisherNature Publishing Group
dc.subjectCaregivers
dc.subjectFamily
dc.subjectHumans
dc.subjectMouth Diseases
dc.subjectPalliative Care
dc.subjectQualitative Research
dc.titleOral Care of Palliative Care Patients - Carers' and Relatives' Experiences. A Qualitative Study.
dc.typejournal-article
dc.typeArticle
plymouth.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/29855591
plymouth.issue11
plymouth.volume224
plymouth.publisher-urlhttp://dx.doi.org/10.1038/sj.bdj.2018.434
plymouth.publication-statusAccepted
plymouth.journalBritish Dental Journal
dc.identifier.doi10.1038/sj.bdj.2018.434
plymouth.organisational-group/Plymouth
plymouth.organisational-group/Plymouth/Faculty of Health
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Dental School
plymouth.organisational-group/Plymouth/Faculty of Health/Peninsula Medical School
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA03 Allied Health Professions, Dentistry, Nursing and Pharmacy
plymouth.organisational-group/Plymouth/REF 2021 Researchers by UoA/UoA20 Social Work and Social Policy
plymouth.organisational-group/Plymouth/Research Groups
plymouth.organisational-group/Plymouth/Research Groups/FoH - Community and Primary Care
plymouth.organisational-group/Plymouth/Research Groups/Institute of Health and Community
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)
plymouth.organisational-group/Plymouth/Research Groups/Institute of Translational and Stratified Medicine (ITSMED)/CCT&PS
plymouth.organisational-group/Plymouth/Research Groups/Plymouth Institute of Health and Care Research (PIHR)
plymouth.organisational-group/Plymouth/Users by role
plymouth.organisational-group/Plymouth/Users by role/Academics
plymouth.organisational-group/Plymouth/Users by role/Researchers in ResearchFish submission
dc.publisher.placeEngland
dcterms.dateAccepted2018-01-03
dc.rights.embargodate2018-12-1
dc.identifier.eissn1476-5373
dc.rights.embargoperiodNot known
rioxxterms.funderNational Institute for Health Research
rioxxterms.identifier.projectNIHR Academic Clinical Fellowship
rioxxterms.versionofrecord10.1038/sj.bdj.2018.434
rioxxterms.licenseref.urihttp://www.rioxx.net/licenses/all-rights-reserved
rioxxterms.licenseref.startdate2018-06-08
rioxxterms.typeJournal Article/Review
plymouth.funderNIHR Academic Clinical Fellowship::National Institute for Health Research


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