Now showing items 1-6 of 6

  • Development and validation of Spasticity Index-Amyotrophic Lateral Sclerosis. 

    Milinis, K; Tennant, A; Mills, RJ; Al-Chalabi, A; Burke, G; Dick, DJ; Ealing, J; Hanemann, CO; Harrower, T; McDermott, CJ; Majeed, T; Pinto, A; Talbot, K; Williams, T; Young, CA; TONiC study group
    OBJECTIVES: Spasticity is a common and disabling feature of amyotrophic lateral sclerosis (ALS). There are currently no validated ALS-specific measures of spasticity. The aim of this study was to develop and use a self-report ...
  • DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis – a randomised controlled trial 

    McDermott, CJ; Bradburn, MJ; Maguire, C; Cooper, CL; Baird, WO; Baxter, SK; Cohen, J; Cantrill, H; Dixon, S; Ackroyd, R; Baudouin, S; Bentley, A; Berrisford, R; Bianchi, S; Bourke, SC; Darlison, R; Ealing, J; Elliott, M; Fitzgerald, P; Galloway, S; Hamdalla, H; Hanemann, CO; Hughes, P; Imam, I; Karat, D; Leek, R; Maynard, N; Orrell, RW; Sarela, A; Stradling, J; Talbot, K; Taylor, L; Turner, M; Simonds, AK; Williams, T; Wedzicha, W; Young, C; Shaw, PJ (2016-06-01)
  • Management of the ataxias towards best clinical practice 

    Bates, C; Baxter, P; Bonney, H; Bremner, F; Bunn, L; Carrillo Perez-Tome, M; Chung, M; Cipolotti, L; de Silva, R; Duberley, K; Ealing, J; Emmanuel, A; Giunti, P; Greenfield, P; Hadjivassiliou, M; Harshavardhana, N; Hayward, K; Hendriksz, C; Hersheson, J; Horvath, R; Hurford, J; Jaffer, F; Kilbride, C; Lowit, A; Marsden, J; Nemeth, A; Noordeen, MHH; Panicker, J; Pantazis, A; Parkinson, M; Redmond, L; Uus, K (Ataxia UKLondon, UKUnited Kingdom, 2016-07-31)
    This document aims to provide recommendations for healthcare professionals on the diagnosis and management of people with progressive ataxia. The progressive ataxias are rare neurological conditions, and are often poorly ...
  • Measuring coping in people with amyotrophic lateral sclerosis using the Coping Index-ALS: A patient derived, Rasch compliant scale. 

    Young, CA; McDermott, CJ; Williams, TL; Ealing, J; Majeed, T; Al-Chalabi, A; Dick, DJ; Talbot, K; Harrower, T; Pinto, A; Hanemann, CO; Burke, G; Roberts, R; Mills, RJ; Tennant, A; TONiC study group (Netherlands, 2021-02-15)
    OBJECTIVE: The progressively disabling and terminal nature of ALS/MND imposes major coping demands on patients. We wished to improve the psychometric properties of our previously published MND-Coping Scale, so that ...
  • Measuring quality of life in ALS/MND: validation of the WHOQOL-BREF 

    Young, CA; Mills, R; Al-Chalabi, A; Burke, G; Chandran, S; Dick, DJ; Ealing, J; Hanemann, CO; Harrower, T; Mcdermott, CJ; Majeed, T; Pinto, A; Talbot, K; Walsh, J; Williams, TL; Tennant, A (Informa UK Limited, 2020-07-02)
  • The relationships between symptoms, disability, perceived health and quality of life in amyotrophic lateral sclerosis/motor neuron disease 

    Young, CA; Ealing, J; McDermott, C; Williams, T; Al-Chalabi, A; Majeed, T; Burke, G; Pinto, A; Dick, D; Talbot, K; Harrower, T; Walsh, J; Chandran, S; Hanemann, CO; Mills, R; Tennant, A (Informa UK Limited, 2019-07-03)

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